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Parents of boy with cerebral palsy look for support

.........BARIPADA: A poor couple of Baripada town has only one dream, to see their son lead a normal life. Their seven-year-old son Alok Sen has been diagnosed with cerebral palsy and epilepsy and needs immediate specialist care.Residents of Babusahi in Ward No. 5 at heart of Baripada town, Alok’s father Rabi said he has been running from pillar to post for the last three years to get their son cured and had done everything within his reach. Rabi, who runs a small ‘paan’ shop in the local market, said the disorder began when Alok was an infant. Rabi said when they were returning from Rath Yatra in the town with six-month-old Alok, the child started vomiting and became weak. They immediately took him to District Headquarters Hospital. The child specialists of the DHH diagnosed water storage in his brain and referred him to Sishu Bhawan, Cuttack. At Sishu Bhawan, the doctors reportedly denied him admission citing that tests are done at SCB Medical, Cuttack, Rabi said. Alok underwent treatment for meningitis at SCBMCH on July 23, 2010 and during the stay, fluids were extracted from his spinal cord for tests. He was discharged from SCBMCH on August 3 after primary treatment, the boy’s father said. Back home, Alok’s condition started deteriorating. His spinal cord, legs and hands started bending and his diet reduced drastically. The boy could not sleep as his body ached severely, Rabi said. Unable to see his son’s condition, Rabi borrowed some money from well-wishers and took him to Apollo Hospital at Bengaluru and later to Sri Sathya Sai Institute of Higher Medical Sciences (SSSIHMS), Puttaparthi. The two medical institutions diagnosed Alok with cerebral palsy and epilepsy. The specialists there advised his parents to arrange more than `12 lakh for treatment. As the treatment cost was beyond their reach, the poor couple returned home. In Baripada, they knocked the doors of Chief District Medical Officer, Sub-Collector, Collector and other higher officials but failed to get succour.Meanwhile, Rabi learnt about Rashtriya Bal Swasthya Karyakram, a Central scheme for treatment of children from financially poor background. He hopes to get some help if the State Government intervenes.With Alok’s condition deteriorating by the day, his parents are praying for a miracle.

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News Updated: 5/29/2017 10:04:43 AM.
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